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RESPOND: International Cohort Consortium of Infectious Disease
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RESPOND: International Cohort Consortium of Infectious Disease

Studies 0
Build an innovative, flexible and dynamic cohort consortium for the study of infectious diseases, including HIV and people at risk for HIV, as a generic structure for facilitating multi stakeholder involvement.
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Members

Investigators Contacts
  • Dr. Prof. Jens Lundgren
    CHIP, University of Copenhagen
  • Jakob Friis Larsen
    CHIP, University of Copenhagen

General Information

Year created
2017
Types of cohorts
  • Patient/disease cohort
Countries
  • Australia
  • Georgia
  • Netherlands
  • Belgium
  • Germany
  • Italy
  • France
  • Spain
  • Switzerland
  • United Kingdom
  • Sweden
  • Croatia
Region
Western Europe, Eastern Europe and Australia
Setting
International
Funding
The Consortium has received funding from ViiV Healthcare LLC and Gilead Sciences and Merck Sharp & Dohme. Additional support has been provided by participating cohorts contributing data in-kind and/or statistical support.
Criteria of cohort's to be included
Clinical observational studies that collect retrospective and prospective observational cohort data and, for some studies, biologic samples.
Health topic
  • Public health
  • Communicable diseases
  • General epidemiology
  • Other : COVID-19 and Infectious diseases
Socio-environmental context
  • NA

Participants

Number of participants

Total
35,000
With harmonized data
35,000

Age range of the samples

Minimum age
18

Methodology for harmonization and integration

Strategy of harmonization
Ex-post
Data processing methods
  • Standardisation
    • Type of infrastructure
    Data are centrally located
    Integrative data analysis
    • Pooled analyses
    • Other : All cohorts used the HIV Cohorts Data Exchange Protocol (HICDEP) for data collection (details at https://hicdep.org/).
    Supplementary information
    RESPOND Consortium Description v1.0 2019: https://www.chip.dk/Portals/0/files/RESPOND/RESPOND_Consortium-description_V1.0_2019MAY29.pdf?ver=2019-10-02-144627-317 Greenberg, Lauren, et al. "Uptake and discontinuation of integrase inhibitors (INSTIs) in a large cohort setting." JAIDS Journal of Acquired Immune Deficiency Syndromes 83.3 (2020): 240-250. https://journals.lww.com/jaids/Abstract/2020/03010/Uptake_and_Discontinuation_of_Integrase_Inhibitors.9.aspx

    Number of cohorts

    Total
    18
    With harmonized data
    18
    Will more cohorts be harmonized?
    Number of harmonized variables (max.)
    100

    Access

    Availability of metadata
    Under request
    Availability of individual data
    Under request