The following are initiatives that have harmonized and/or integrated cohort studies. These initiatives include cohorts with participants from the general population, patients with specific diseases, and clinical trials.
See also explanations about the Methodology for harmonization and integration classification.
Initiatives
| Acronym | Name | Description |
|---|---|---|
| ABCPP | After Breast Cancer Pooling Project | Examine the role of physical activity, adiposity, dietary factors, supplement use, and quality ... |
| AGRICOH | A consortium of agricultural cohort studies | The objective of AGRICOH is to support and mantain collaboration and data sharing/pooling to ... |
| Antibiotic treatment and survival of nursing home patients with lower respiratory tract infection | Antibiotic treatment and survival of nursing home patients with lower respiratory tract infection | Assess the effects of different antibiotic treatment strategies on survival of elderly nursing ... |
| ART-CC | Antiretroviral Therapy Cohort Collaboration | Estimate prognosis of HIV-1 positive, treatment naïve patients initiating highly active ... |
| ATHLOS | Ageing Trajectories of Health: Longitudinal Opportunities and Synergies | The objective of the ATHLOS Project is to achieve a better understanding of ageing by ... |
| B-CAST | Breast CAncer Stratification (B-CAST): Understanding the determinants of risk and prognosis of molecular breast cancer subtypes | In B-CAST the overall goal is to investigate the determinants of the development of specific ... |
| BBMRI-NL | BBMRI-NL-Biobank | The projects mission is to maximize the use of biosamples, images and data for health research ... |
| BioSHaRE-EU | Biobank Standardisation and Harmonisation for Research Excellence in the European Union | The objective of BioSHaRE-EU is to build upon tools and methods available to achieve solutions ... |
| CanPath | Canadian Partnership for Tomorrow’s Health | The Canadian Partnership for Tomorrow’s Health (CanPath) is Canada’s largest population health ... |
| CNODES | CNODES: the Canadian Network for Observational Drug Effect Studies | Use collaborative, population-based approaches to obtain rapid answers to questions about drug ... |
| COHORTS.SE | Swedish Cohort Consortium | The objective of COHORTS.SE is to coordinate all Swedish prospective population-based cohorts in ... |
| CORDELIA | Collaborative cOhorts Reassembled Data to study mEchanisms and Longterm Incidence of chronic diseAses | The aim of CORDELIA is to generate a population database of more than 170,000 participants ... |
| COSMIC | COSMIC: Cohort Studies of Memory in an International Consortium | Harmonise data from international cohort studies of cognitive ageing, in order to better ... |
| EClipSE | Epidemiological Clinicopathological Studies in Europe | The aim of EClipSE is to address the lack of statistical power within individual studies for ... |
| EPHOR | Exposome Project for Health and Occupational Research | EPHOR will develop methods and tools to characterise the working-life exposome. By applying ... |
| EPOSA | European Project on Osteoarthritis | EPOSA is a collaborative study involving six cohort studies on ageing from six countries from ... |
| EUCAN-Connect | EUCAN CONNECT | The specific objectives of EUCAN-Connect are: * to deliver an open, federated data platform to ... |
| euCanSHare | euCanSHare | euCanSHare is a joint EU-Canada project to establish a cross-border data sharing and ... |
| Gateway | The Gateway to Global Aging Data | The Gateway to Global Aging Data (g2aging.org) is a data and information platform developed to ... |
| GEMRIC | Global ECT-MRI Research Collaboration | GEMRIC is a Global network and research collaboration for projects focused on determining the ... |
| GENIE | GENIE: Genomics Evidence Neoplasia Information Exchange | It is a multi-phase, multi-year, international, pancancer registry, built through data sharing, ... |
| GenomEUtwin | GenomEUtwin | The aim of GenomEUtwin is to develop novel strategies to maximally utilize the unique features ... |
| HALCyon | Healthy Ageing across the Life Course | This interdisciplinary collaborative programme aims to identify how healthy ageing is affected ... |
| HELIX | The Human Early-Life Exposome | The HELIX project is funded to exploit novel tools and methods for characterisation of ... |
| HeLTI | Healthy Life Trajectories Initiative | The specific objectives of the initiative are: - Conduct a set of harmonized, coordinated ... |
| High-Risk Myocardial Infarction Database Initiative | High-Risk Myocardial Infarction Database Initiative | The primary objectives of this initiative were to use this large database to define more ... |
| I3C | International Childhood Cardiovascular Cohort Consortium | The objectives of I3C are: 1. Identify incident cardiovascular endpoints using self-reported ... |
| I4C | International Childhood Cancer Cohort Consortium | The aim of I4C is to understand the aetiology and mechanistic underpinnings of childhood cancer ... |
| ICC-dementia | International Centenarian Consortium - dementia | The aim of ICC-dementia is to harmonise centenarian and near-centenarian studies internationally ... |
| IDEAR | Integrated Datasets in Europe for Ageing Research | The aim of the IDEAR network is to investigate how determinants in later working life, during ... |
| IGEMS | Interplay of Genes and Environment across Multiple Studies | The maing objective of the IGEMS is to understand why early life adversity, and social factors ... |
| IHCC | International HundredK+ Cohorts Consortium | To create a global network for translational research that utilizes large cohorts to enhance the ... |
| interconnect | interconnect | The aim of interconnect is to develop a global data access and results sharing’ network that ... |
| InterLACE | International Collaboration for a Life Course Approach to Reproductive Health and Chronic Disease Events | The aim of InterLACE is to advance understandingof women’s reproductive health in relation to ... |
| Lifebrain | Lifebrain: Healthy minds 0–100 years: Optimising the use of European brain imaging cohorts | Our main objective is to identify determinants of brain, cognitive and mental health at ... |
| LIFEPATH | Lifecourse biological pathways underlying social differences in healthy ageing | The overarching aim of the LIFEPATH project is to understand the determinants of diverging ... |
| MINDMAP | Promoting mental well-being and healthy ageing in cities | The objectives of MINDMAP are: 1. to harmonize and link data from population registries and ... |
| NCI - Cohort Consortium | National Cancer Institute Cohort Consortium | The main objectives of NCi are: 1. Foster communication among investigators leading cohort ... |
| NEAR | National E-lnfrastructure for Aging Research | The objective of NEAR is to improve the health, care, and well-being of older people by ... |
| OMEGA-NET | Network on the Coordination and Harmonisation of European Occupational Cohorts project | The overarching concept of OMEGA-NET is to create a network to optimize and integrate ... |
| ReACH | Research Advancement through Cohort Cataloguing and Harmonization | The aim of ReACH is to provide resources in the form of a comprehensive web-based catalogue and ... |
| RESPOND | RESPOND: International Cohort Consortium of Infectious Disease | Build an innovative, flexible and dynamic cohort consortium for the study of infectious ... |
| SAPRIN | South African Population Research Infrastructure Network | The objective of SAPRIN is to draw together and harmonise a network of South Africa’s health and ... |
| Second primary malignancies in thyroid cancer patients | Second primary malignancies in thyroid cancer patients | Evaluate the risk of second cancer and leukaemia in patients with papillary or follicular ... |
| Sentinel Initiative | Sentinel Initiative | Serve as a system to analyze and assess safety risks and effectiveness in FDA-approved(Food and ... |
| SIC | Social Inequality in Cancer cohort study | The Social Inequality in Cancer (SIC) cohort study was established to determine path- ways ... |
| STROKOG | Stroke and Cognition Consortium | STROKOG is a consortium of longitudinal studies of cognitive disorders following stroke, TIA or ... |
ABCPP
After Breast Cancer Pooling Project
Examine the role of physical activity, adiposity, dietary factors, supplement use, and quality of life in breast cancer prognosis.
AGRICOH
A consortium of agricultural cohort studies
The objective of AGRICOH is to support and mantain collaboration and data sharing/pooling to research the association between agricultural exposures and different health outcomes, with emphasis on ...
Antibiotic treatment and survival of nursing home patients with lower respiratory tract infection
Antibiotic treatment and survival of nursing home patients with lower respiratory tract infection
Assess the effects of different antibiotic treatment strategies on survival of elderly nursing home residents with lower respiratory tract infections in the United States and the Netherlands, ...
ART-CC
Antiretroviral Therapy Cohort Collaboration
Estimate prognosis of HIV-1 positive, treatment naïve patients initiating highly active antiretroviral therapy (ART)
ATHLOS
Ageing Trajectories of Health: Longitudinal Opportunities and Synergies
The objective of the ATHLOS Project is to achieve a better understanding of ageing by identifying patterns of healthy ageing pathways or trajectories, the determinants of those patterns, the ...
B-CAST
Breast CAncer Stratification (B-CAST): Understanding the determinants of risk and prognosis of molecular breast cancer subtypes
In B-CAST the overall goal is to investigate the determinants of the development of specific breast cancer subtypes, and subsequent prognosis. Models and tools will be developed to allow ...
BBMRI-NL
BBMRI-NL-Biobank
The projects mission is to maximize the use of biosamples, images and data for health research on the prevention, diagnosis and treatment of diseases. For this, these resources are available in a ...
BioSHaRE-EU
Biobank Standardisation and Harmonisation for Research Excellence in the European Union
The objective of BioSHaRE-EU is to build upon tools and methods available to achieve solutions for researchers to use pooled data from different cohort and biobank studies. This, in order to ...
CanPath
Canadian Partnership for Tomorrow’s Health
The Canadian Partnership for Tomorrow’s Health (CanPath) is Canada’s largest
population health cohort and a national platform for health research. Comprised of more
than 330,000 volunteer ...
CNODES
CNODES: the Canadian Network for Observational Drug Effect Studies
Use collaborative, population-based approaches to obtain rapid answers to questions about drug safety and effectiveness.
COHORTS.SE
Swedish Cohort Consortium
The objective of COHORTS.SE is to coordinate all Swedish prospective population-based cohorts in a national infrastructure, thereby improving the reliability, quality and accessibility of valuable ...
CORDELIA
Collaborative cOhorts Reassembled Data to study mEchanisms and Longterm Incidence of chronic diseAses
The aim of CORDELIA is to generate a population database of more than 170,000 participants followed for more than 5 years, from Spanish cohorts with prospective follow-up.
COSMIC
COSMIC: Cohort Studies of Memory in an International Consortium
Harmonise data from international cohort studies of cognitive ageing, in order to better understand the determinants of cognitive ageing and neurocognitive disorders.
EClipSE
Epidemiological Clinicopathological Studies in Europe
The aim of EClipSE is to address the lack of statistical power within individual studies for specific analyses assessing relationships between data collected during life (e.g., health, cognitive, ...
EPHOR
Exposome Project for Health and Occupational Research
EPHOR will develop methods and tools to characterise the working-life exposome. By applying these, better and more complete knowledge on the working-life exposome will be obtained. Through ...
EPOSA
European Project on Osteoarthritis
EPOSA is a collaborative study involving six cohort studies on ageing from six countries from North to South Europe. This initiative studies the personal and societal burden and its determinants ...
EUCAN-Connect
EUCAN CONNECT
The specific objectives of EUCAN-Connect are:
* to deliver an open, federated data platform to deposit, curate and analyse cohort (meta)data that meets FAIR principles
* to create a sustainable ...
euCanSHare
euCanSHare
euCanSHare is a joint EU-Canada project to establish a cross-border data sharing and multi-cohort cardiovascular research platform.
Specifically, the project will integrate data infrastructures, ...
Gateway
The Gateway to Global Aging Data
The Gateway to Global Aging Data (g2aging.org) is a data and information platform developed to facilitate longitudinal and cross-country analyses on aging, especially those using the family of ...
GEMRIC
Global ECT-MRI Research Collaboration
GEMRIC is a Global network and research collaboration for projects focused on determining the mechanisms of action of Electroconvulsive Therapy using Magnetic Resonance Imaging. GEMRIC has a board ...
GENIE
GENIE: Genomics Evidence Neoplasia Information Exchange
It is a multi-phase, multi-year, international, pancancer registry, built through data sharing, with the goals of powering precision oncology and clinical decision making.
GenomEUtwin
GenomEUtwin
The aim of GenomEUtwin is to develop novel strategies to maximally utilize the unique features of twin cohorts, including the availability of longitudinal data and sample information about ...
HALCyon
Healthy Ageing across the Life Course
This interdisciplinary collaborative programme aims to identify how healthy ageing is affected by factors operating across life using data from nine UK cohort studies.
HELIX
The Human Early-Life Exposome
The HELIX project is funded to exploit novel tools and methods for characterisation of early-life exposure to a wide range of environmental hazards. These require integration and linkage with data ...
HeLTI
Healthy Life Trajectories Initiative
The specific objectives of the initiative are:
- Conduct a set of harmonized, coordinated studies that will evaluate interventions along the life course from pre-conception to childhood to ...
High-Risk Myocardial Infarction Database Initiative
High-Risk Myocardial Infarction Database Initiative
The primary objectives of this initiative were to use this large database to define more precisely the prognostic profile of this high risk population and to perform rigorous subset analyses.
The ...
I3C
International Childhood Cardiovascular Cohort Consortium
The objectives of I3C are:
1. Identify incident cardiovascular endpoints using self-reported morbidity validated by adjudication of medical records, and
2. Identify decedents using the National ...
I4C
International Childhood Cancer Cohort Consortium
The aim of I4C is to understand the aetiology and mechanistic underpinnings of childhood cancer by exploiting prospectively collected exposure and biomarker data.
A summary is provided in the ...
ICC-dementia
International Centenarian Consortium - dementia
The aim of ICC-dementia is to harmonise centenarian and near-centenarian studies internationally to describe the cognitive and functional profiles of exceptionally old individuals, and ascertain ...
IDEAR
Integrated Datasets in Europe for Ageing Research
The aim of the IDEAR network is to investigate how determinants in later working life, during the retirement transition, and in early retirement influence for how long older individuals are able ...
IGEMS
Interplay of Genes and Environment across Multiple Studies
The maing objective of the IGEMS is to understand why early life adversity, and social factors such as isolation and loneliness, are associated with diverse outcomes including mortality, physical ...
IHCC
International HundredK+ Cohorts Consortium
To create a global network for translational research that utilizes large cohorts to enhance the understanding of the biological and genetic basis of disease and improve clinical care and ...
interconnect
interconnect
The aim of interconnect is to develop a global data access and results sharing’ network that enables existing data to be readily used in cross-cohort analyses to understand population differences ...
InterLACE
International Collaboration for a Life Course Approach to Reproductive Health and Chronic Disease Events
The aim of InterLACE is to advance understandingof women’s reproductive health in relation to chronic disease risk by pooling individual participant data from several cohort and cross-sectional ...
Lifebrain
Lifebrain: Healthy minds 0–100 years: Optimising the use of European brain imaging cohorts
Our main objective is to identify determinants of brain, cognitive and mental health at different stages of life. By integration, harmonisation and enrichment of major European neuroimaging ...
LIFEPATH
Lifecourse biological pathways underlying social differences in healthy ageing
The overarching aim of the LIFEPATH project is to understand the determinants of diverging ageing pathways among individuals belonging to different socio-economic groups. This will be achieved via ...
MINDMAP
Promoting mental well-being and healthy ageing in cities
The objectives of MINDMAP are:
1. to harmonize and link data from population registries and cohort studies of mental health ageing in European cities to allow co-analysis of data, based on ...
NCI - Cohort Consortium
National Cancer Institute Cohort Consortium
The main objectives of NCi are:
1. Foster communication among investigators leading cohort studies of cancer.
2. Promote collaborative research projects for topics not easily addressed in a single ...
NEAR
National E-lnfrastructure for Aging Research
The objective of NEAR is to improve the health, care, and well-being of older people by optimizing a national integration of the major Swedish longitudinal, population-based projects on the health ...
OMEGA-NET
Network on the Coordination and Harmonisation of European Occupational Cohorts project
The overarching concept of OMEGA-NET is to create a network to optimize and integrate occupational, industrial, and population cohorts at the European level, and to provide a foundation for an ...
ReACH
Research Advancement through Cohort Cataloguing and Harmonization
The aim of ReACH is to provide resources in the form of a comprehensive web-based catalogue and an harmonization platform to optimize and expand the use of Canadian pregnancy and birth cohorts ...
RESPOND
RESPOND: International Cohort Consortium of Infectious Disease
Build an innovative, flexible and dynamic cohort consortium for the study of infectious diseases, including HIV and people at risk for HIV, as a generic structure for facilitating multi ...
SAPRIN
South African Population Research Infrastructure Network
The objective of SAPRIN is to draw together and harmonise a network of South Africa’s health and demographic surveillance sites (HDSS) situated in rural and urban setting, each with a population ...
Second primary malignancies in thyroid cancer patients
Second primary malignancies in thyroid cancer patients
Evaluate the risk of second cancer and leukaemia in patients with papillary or follicular thyroid cancer treated with radioiodine or external beam radiation therapy.
Sentinel Initiative
Sentinel Initiative
Serve as a system to analyze and assess safety risks and effectiveness in FDA-approved(Food and Drug Administration) drugs and medical products using electronic health data.
SIC
Social Inequality in Cancer cohort study
The Social Inequality in Cancer (SIC) cohort study was established to determine path- ways through which socioeconomic position affects morbidity and mortality, in particular common subtypes of ...
STROKOG
Stroke and Cognition Consortium
STROKOG is a consortium of longitudinal studies of cognitive disorders following stroke, TIA or small vessel disease. Developed under the auspices of VASCOG (Society for the Study of Vascular ...